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Prime Study

The PRIME study (Positive tRansItions through the MEnopause) is a three year NIHR-funded quantitative and qualitative study that will explore, for the first time in the UK, the impact of the menopause on HIV-positive women’s

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The PRIME study (Positive tRansItions through the MEnopause) is a three year NIHR-funded quantitative and qualitative study that will explore, for the first time in the UK, the impact of the menopause on HIV-positive women’s health and wellbeing.

Why are we doing this study?

  • The number of women accessing HIV care in the UK aged 45-56 (potentially menopausal age) has increased from around 400 in 2000, to over 7500 in 2013
  • Very little is known about how HIV-positive women experience the menopause, and how it affects their physical and psychological wellbeing

What is the PRIME Study?

  • The PRIME study (Positive tRansItions through the MEnopause) is a three year NIHR-funded quantitative and qualitative study
  • It will explore, for the first time in the UK, the impact of the menopause on HIV-positive women’s wellbeing (e.g. sexual functioning, quality of life and mental health) and engagement with HIV care (e.g. adherence to antiretroviral therapy and HIV clinic attendance).

What are we doing?

Part 1:

  • In Summer 2015 we held group discussions with HIV-negative and HIV-positive women about their experiences of getting older
  • This has given us a better understanding of how women talk about and experience the menopause

Part 2:

  • From Feburary 2016 to February 2017 we will survey 1500 HIV-positive women aged 45-60
  • We are inviting HIV-positive women from 14 NHS trusts across England to take part
  • We are also conducting in-depth interviews with some women who take part in the survey

Part 3:

  • From January 2016 we have hosted creative workshops at Positively UK
  • Workshops have been open to women living with HIV of all ages
  • They are facilitated by Dr Kat Lowe (Lecturer in Community Performance and Applied Theatre, Royal Central School of Speech and Drama)
  • The workshops focus on using music, creative writing and performance to explore HIV, ageing and being a woman
  • The last workshops will be in April 2016 but we hope to secure funding to continue this work in 2017

 

1000women@naz.org.uk

1000women is a platform for minority ethnic women to tell their own stories, on their terms. To find out more about joining the team or sharing your story, write to 1000women@naz.org.uk

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